Cystic fibrosis (CF) is the most common life threatening genetic condition in
Improvements in treatment over the last 50 years mean that now most children will live to an average age of 38. This is fantastic progress, but has also brought about new health challenges such as CF related diabetes and osteoporosis.
Children and adults with CF and their families also face considerable financial, practical and emotional challenges living with a chronic illness.
At Cystic Fibrosis
This includes providing emotional support to children, adults and their families through counselling, sibling camps, and respite programs; practical support through equipment, hospital transfers, physiotherapy, accommodation, and special support for children during hospital stays; advocacy and education programs; and research.